The Issue

Summary of Challenges in the Long-Term Care Ecosystem

The long-term care (LTC) ecosystem in the United States is facing a growing set of challenges driven by demographic shifts, workforce shortages, and systemic financing issues. As the population ages—particularly the Baby Boomer generation—the demand for long-term services and supports is rapidly increasing. Many individuals prefer to age in their homes or communities, but the infrastructure and workforce necessary to support this shift have not kept pace. Nationally and in Washington, DC, the strain on caregivers—both paid and unpaid—is mounting, creating gaps in the quality, availability, and consistency of care.

A major challenge is the long-term care workforce crisis. Direct care workers—home health aides, personal care aides, and nursing assistants—are often underpaid, lack benefits, and face high levels of burnout. In DC, recruitment and retention of these essential workers are particularly difficult due to the city’s high cost of living and competition from other sectors. Without sufficient investment in training, career pathways, and compensation, the sector will struggle to meet growing needs.

Medicaid, which funds the majority of long-term care services for low-income individuals, poses additional challenges. While DC has made progress in expanding home- and community-based services, the Medicaid reimbursement rates often fail to cover the true cost of care, limiting provider capacity and innovation. The complexity of eligibility and service delivery also creates barriers for families seeking support. Together, these issues underscore the urgent need for policy reform, sustainable investment, and community-based solutions that reflect the values of dignity, independence, and equity for all who need long-term care.

What is Long Term Care?

Long term care includes a wide range of services and supports—beyond medical care—designed for individuals with chronic health conditions, disabilities, or limitations caused by illness or injury or age-related decline. These services help people who can no longer independently perform essential daily tasks, known as activities of daily living (ADLs).

Common Activities of Daily Living (ADLs) Include:

When individuals struggle with one or more of these tasks, assistance is required—often beginning at home. While family members have long played a central role in providing long-term care, especially women, the growing reliance on paid caregivers—both professionals and paraprofessionals—has become essential to meeting care needs as family dynamics and workforce participation have evolved.

Long-term care services can be delivered:

The DC workforce

The DC aging population could rise as much as 24.4% by 2030. Nationally, this population is expected to increase by 73% between 2011 and 2029.

As of June 2024, the District had about 11,500 direct care employees, yet 36,000 residents needed their care.

During the renewal cycle in fall 2023, over 4,000 formerly licensed Certified Nurse Aides (CNAs) and Home Health Aides (HHAs) did not renew their credentials, roughly 30% of the long term care workforce.

In a recent survey, 80% of DC healthcare providers reported they were unable to serve a client due to staffing issues.
Inadequate staffing for the growing elderly population has resulted in burnout for direct care employees and negative health and financial outcomes for patients, including a higher frequency of medical errors and delayed care.

For more information on long-term care issues and services, visit our partners and national leaders in the field: PHI, Leading Age, National Skills Coalition, and AARP.

87%
are Black or African American.
77%
are female.
35%
live below 200% of the federal poverty level.
76%
receive some form of public benefits.
35%
care for at least one child under 18. 47% lack affordable housing.